I stabbed myself…

I never thought that I would stab myself! I never thought even though it was so very painful to do that it would give so much needed relief!

I have had migraines since I was 15, they definitely are not any fun! I named my migraine Julie (Previous blood post) and she does not like to leave me alone! Along with the horrific pain I get extreme sound & light sensitivity and very dizzy and nauseous! I was able to somewhat control Julie but as I got older she got more aggressive!

For years I was only prescribed Imitrex, which did not help! I had like 4 different meds/OTC meds and a heated eye mask to try to help get rid of Julie as soon as possible or get some sort of relief as once she shows up she stays for at least 4 days.

January through end of March are always the worst time as Julie is there with me EVERY SINGLE DAY!! I couldn’t live like this anymore and was fed up with the treatment of the migraines I was receiving. I finally convinced my pcp to try something else and actually got a medication that somewhat knocked the pain down, not to an “I can ignore it” level but it was a little better. Unfortunately we had to try this med for a bit before we could go to the insurance company to get better meds.

I wasn’t thrilled with going back to the neurologist I had dealt with before, but then thought it would be okay as we were dealing with migraines and those are more understandable. I was prescribed Emgality and it took over 2 months to get the insurance company to approve it!

I was not expecting anything miraculous and being very very scared of needles was not thrilled with the idea of stabbing myself every month, but that is how much I am over dealing with Julie.

I finally got the injection meds in the beginning of December and holy rusted metal Batman did that freaking hurt! I almost vomited it hurt that bad to inject the meds into my leg, but I insisted that I needed to do it myself. I was amazed with the results! It kick Julie in the face,, the pain was gone and I mean GONE! Oh sure the nausea, dizziness, light & sound sensitivity ramped up, but the level 12 pain disappeared. “POOF”

I was told it could take a few weeks to kick in and work but the pain was gone with in a day. The last week of December Julie showed up with the pain again, and sadly had to wait until January 7 to do another injection as they have to be 30 days apart. I got used to the very little to no pain for the month that I hated having it back and it has been very hard to wait for relief when you know how good it was!

At my most recent check up with the neurologist, she said it will only get better the more you take the medication. I am very impressed and optimistic about this medication. I have been searching for and trying so many different ways to get relief from Julie and am beyond thrilled to finally have some! After so many many years of dealing with this horrible pain it is still surprising at how you forget how bad it was when you have a couple weeks of relief.

I highly doubt that this will ever make me like needles, but I may get used to and okay with this injection!

I almost couldn’t stab myself again on January 7, the thought of all that pain and fear of needles almost got me to not do it! I made myself do it and it didn’t hurt nearly as bad as the first time, but it still hurt a lot!  I will probably encounter that every time but it is so worth it to lessen and/or end the pain.

Julie is still hanging around right now, but she is only causing and dull ache, enough to know she is there but not enough to be a huge problem. Dizziness and lightheadedness is still ramped up and I look forward to that lessening as well.

My thoughts are so far I am very impressed with Emgality and will continue to stab myself once a month.

If you suffer with migraines (which I truly hope that you don’t) how bad are they? What helps knock the pain down?

Oh Julie….

Julie is mean and I really really don’t like her! She showed up in my life a long time ago and refuses to leave, I’ve never wanted someone to leave so bad! I never invite her over but she just shows up and ends up staying around for days! I try so hard to get her to leave but she just is too stubborn and won’t go easily!

She gets so bad some days that I want to cry and vomit, it’s disgusting! She just doesn’t get the fact that I don’t want her hanging around! I have meds that are supposed to help keep Julie away but sadly they haven’t been helping much! She causes so much pain, dizziness, nausea, vision issues and more! I’m so mad at her, I could spit!

I should probably tell you that Julie is a human, but an ugly migraine! Yup I named my migraines, I mean why not, they name storm & hurricanes!

They say the peppermint is great for migraines, but sadly I am allergic to peppermint and it gives me a migraine! I do know some of my migraine triggers, peppermint, eucalyptus, cinnamon, the 1st 3 months of the year! No joke on that last one, 24/7 migraine for at least 2 1/2 months (Jan-March). I finally broke down and bought some Excedrin migraine pills, they dull the pain a tiny bit sometimes, but I can’t takes this a lot as they have caffeine in them and I can’t consume caffeine anymore since my Nissan Fundoplication (they should take the “fun” part out of that word, since it’s no where near fun).

I went to see my pcp to talk about better meds. I am so tired of Julie that I asked for an injection medication and I am absolutely horrified of needles, but I am to the point of trying anything! I’ve tried CBD oil and the taste and the way it made me feel, I don’t want to take it! My pcp increased the dose of the Imitrex I was taking from 50 to 100, that didn’t help at all which I’ve been telling them for years, and it added extreme pain in my neck and shoulders for a good hour, it got so bad I was ready to go to the ER! I finally got off that one and tried another as she said insurance won’t cover the good meds until I try other meds of course! The new meds help to dull the pain a bit, but not enough! I would love to be able to go places without carrying a drug store with me because I need 3 different meds to get calm down Julie! My nausea meds help a little too as Julie makes me very nauseous!

Next step is seeing a neurologist, which isn’t fun for me as they don’t ever take me seriously! Of course this is one that I have seen before and didn’t really like, but there aren’t any others around here! I said I’d go see him as this is migraines we are dealing with and not some mystery he doesn’t want to solve! The only thing is I am afraid that he will messed around with the little shit they like to do oh so much that I have already tired and drag this out instead of saying oh let’s get rid of Julie shall we! I could be surprised and he may jump on it and tackle it good right away, but seriously I’ve seen him before so I have more doubts about that!

I may have a “small” issue getting along with some doctors as I can tell if they will be a good match for me and helpful within 15 seconds! I am very rarely wrong about that even with going in very optimistic and hopeful! I have tendency to let them spew their bullshit and then tell them what I feel and they won’t want to help me anymore! Sorry, not sorry, but I am dealing with myself & my health here and have learned to not take their meaninglessness bullshirt anymore! I have said it a million times, doctors need to go back to school and learn how to talk and listen to their patients and learn that not one thing works for every person! They could learn a ton from their nurses and aides as they are usually always amazing! Shhhhh, I could go on for days, but I’ll shoosh myself here!

Here’s hoping this doctor can help get rid of Julie, or at least make it so she can’t Vivian as often! My door mat says “GO AWAY”, not “WELCOME”!

Do you deal with migraines? Do they stick around so much that you named them? What works for you to ease the pain?