Tag: understanding

Time alone

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I spend a lot of my time alone because alone is safe for me!

Alone is peaceful and relaxing!

Alone is a controlled environment!

I understand alone more than not alone!

I don’t feel anxious alone!

I don’t feel uncomfortable alone!

People are work and unpredictable!

Being alone is less stressful and risky!

Pain changes people! It makes you trust people less, overthink more, withdraw more and more self dependent!

It doesn’t make us weak and the battle we fight inside ourselves to be the best we can be and make it through the day, some people will just never understand!

Shouldn’t be this way….

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Nobody should have to love like this!

Nobody should have to be in so much pain!

Nobody should have to live with this much anxiety!

Nobody should have to live with this much fear!

Nobody should have to live with this much sickness!

Nobody should have to live with this much depression!

Nobody should have to live with mush hate!

Nobody should have to live with this much dizziness!

Nobody and I mean NOBODY should have to love like this!

Where did all of this come from?

Why does breathing have to hurt so much?

Why does it feel like you’ve been hit by a train when waking up?

Why does someone who is able to do anything one day and then the next day a small injury takes it all away?!

Why does this happen?

Why can’t doctors figure out a way to help?

Why can’t people recognize how much you suffer and get some assistance?

Why do some doctors lie in your medical charts just because they don’t understand or believe what is happening to you?

Why do some people who abuse the system get disability, but the ones who desperately need the help and are suffering not get it?

Why do people have to suffer?

Why do people get told that they are too disabled to work, but can’t get disability?

Why does life have to be this way?

Why does the medication that is supposed to help cause bad side effects that prevents you from being able to take it?

What does life have to be so difficult?

Why can’t people be able to be healthy and happy?

Why can medication help some people but not all people?

Why? Why? Why?

Nobody should have to!

What is one thing that all chronic illness sufferers want?  Answers to health issues and understanding!

Stop me if you’ve heard this before! I love stuffed animals!

They don’t understand….

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What is one thing that people really don’t understand about fibromyalgia???

The severity of the pain!! They don’t understand and sometimes don’t believe ot can actually hurt that much!

Today I wheeled my chair closer to my desk and lightly tapped my knee on the edge of my desk, you would have thought someone hit me with a hammer!  I almost cried!! No joke, and I barely touched it! The pain only lasted about a minute, but the pain was terrible!

Sadly that is a common the g with fibromyalgia! At times people can just rely their hand on my arm and my eyes will fill with tears! When they grab my arm so that I don’t fall, it sends sharp pain shooting through my body! It all hurts too much, way too much!

Not many people will understand that! They will look at you like you are crazy, saying “it can’t hurt that bad!” Oh, but it does! Everything hurts so much more when you have fibromyalgia and I  get that it is hard to believe! Iv’s are the worst, they really hurt! I’ve had nurses try to argue with me that it can’t possibly hurt, their argument is always “it’s doesn’t hurt, there is no needle left in your arm!” Sure no needle, but there is still something in my arm and it really hurts!

I have to stab myself every month with my migraine medication! It is real torture to hold that needle in my leg for 10 seconds while it injects the medication and with extreme pain in my leg! I mean the minute of bad pain is worth it as it helps me not get so many migraines , but dang it if you regret it during the injection!

Sometimes all you have to do is wake up and you feel like you were run over by a train! Yes, I know I can’t really know what that feels like but, seriously it is a major amount of serious pain here!

I hate this pain! I hate that people don’t want to or try to understand! I hate the place that caused  me to have all this pain! I hate that this pain has taken so very much from me!

I wish more people understood! I know that they don’t really have to understand, they can’t remember everything for everybody, but it would be nice if more actually did! I wish there was a way to ease the pain! I wish there was a way to get some part of my life back that it stole!

I didn’t ask for this life, but I will continue to do my best to live the life that chose me!

What do you wish more people understood??

P.S. Cats are my most favorite animals ever! They are so beyond wonderful!