I wouldn’t have walked away!!

I saw a quote that said. “Thank you for letting me go, because I wouldn’t have walked away”

There is so much truth to that, it’s almost unbelievable!    I think about the 10 years I spent with a horrible horrible evil workplace! Oh sure it started out good, but it went down hill fast!  They are a very small company and it wasn’t run right, not that I’m an expert on these things! The hate and evil in that place was real, so bad! The harder I tried to prove my worth, the worse it got!

I have a tendency to try to fix things and try to make people see that I am valuable even when they don’t deserve me! The hatred and disrespect in that place made me sick, literally sick! I have grown to despise the word “respect” as so many of them demanded it, but didn’t deserve it or earn it! I will forever stick with and say that “respect is earned, not given”.  I was taught to always respect my elders, and I do, because that is totally different than the respect in this situation!

I would literally cry and throw up driving to work each morning, but I was too scared to leave as starting over at a new job terrified me beyond belief! I was injured at this job, bad, and I haven’t been right since, horrible painful illness that I would not wish on anyone ever! I could feel everything getting worse! I could feel that this place was slowly killing me, yet I couldn’t walk away! I was too afraid!

When they hired a new HR person as the company grew they chose the wrong person! This person did so many wrong and more than likely illegal things, and I’m not the only one who noticed, but I won’t go into all that! She latched on to hating me from day one! I tried to make things better, but it just couldn’t happen! She would ask 1 of the bosses regularly if she could fire me yet! She’d been working on that since the first day I met her when she threatened to fire me because I couldn’t work a full day!

I suffered so much due to the illness and pain and sickness! One day she was out in the plant and I threw a cardboard piece into the box it goes in and she took it as I was throwing it her and she got her way and I was gone! I was so mad because I was let go when there was no reason for it, just that she didn’t like me! I promise and swear I am not embellishing any of her feelings towards me at all! I was scared of how I felt and having to start over!

It didn’t take long for me to realize that it was one the best things that happened, as I didn’t feel that I could walk away by myself! I will always dislike her, but only for the person she is and how she treats people and thinks that she can get away with it all! I remember I defended someone when she said things to them that weren’t right! She simply told me she could say and do whatever she wanted as she was in charge here and it was her way or the highway!

I will always be thankful for them kicking me to the curb as I later found a job where I was truly loved and appreciated! They valued me and my contribution to their company and worked with me to make the company even better! I put in a huge effort to learn more about the job and company and loved it there!

Sadly my health challenges got worse and I was forced to quit working! It still bothers me that I can’t work there, even though I know so much has change there since they sold the company and it probably wasn’t going to be as nice as I remember if I were able to go back!

I am thankful though that even though I can’t work I don’t have to deal with people out in the world! People are exhausting, confusing, horrible, mean and more…

The whole point to this is that you can be upset that someone or some company let you go, but just know that it was probably one of the best things that could happen to you! You may not have been able to walk away when you really needed to!

Stay classy, sassy & a bit smartassy friends!

P.S. If you like barbecue sauce & ranch dressing m try mixing them together, it tastes amazing!!!

Time alone

I spend a lot of my time alone because alone is safe for me!

Alone is peaceful and relaxing!

Alone is a controlled environment!

I understand alone more than not alone!

I don’t feel anxious alone!

I don’t feel uncomfortable alone!

People are work and unpredictable!

Being alone is less stressful and risky!

Pain changes people! It makes you trust people less, overthink more, withdraw more and more self dependent!

It doesn’t make us weak and the battle we fight inside ourselves to be the best we can be and make it through the day, some people will just never understand!

New words needed….

How are you??

Tired……

That’s always the answer! Tired! Not a good answer, because I’m so much more than tired, but it is the standard answer! Some people don’t really want to know, it’s just a thing you ask! Some people want to know, but they don’t want to know everything, just a simple answer.

It is a simple answer but it does not fully describe how I feel! There should be a better word to truly describe how I feel sometimes, but I can never think of one! I was at my checkup with my pcp and I used that word “tired” when she asked how I was really feeling when she said your depression score is higher than it has been, do we need to adjust your meds. I said I have been more tired that usually!

A few days later of course and I’m thinking that I hate the word tired. My brain wasn’t working correctly that day and all I could say was tired, it nobody will ever fully understand it all if I keep using that word! I should have said that I am emotionally, physically, and mentally drained! My body is weak and exhausted, my muscles are weak and sluggish, but when I get that drained, I can’t fully explain how I truly feel!

This is in no way a new feeling for me, just a flare up and it is never fun! It truly is awful to get up and need to rest after changing clothes and making a meal! It is awful how much energy you lose during these flares. Sadly I try to ignore it all because I won’t let myself actually take a day to rest!
I’ve been living with this crap for so many years and still have not gotten used to it or truly let myself take a break, not that I am pushing myself and doing a lot, but still.

It is just so much more than anything I can explain! I don’t think that I will ever fully understand any of this or why it is happening! Can’t get lost thinking of that though, that is a awful hole you don’t want to go down! Cover that hole up, do t want any part of it!

He worst part of all of this is that any test they run shows nothing! Nothing! And most doctors don’t truly believe me when I explain everything that happens, I just have to deal with it all and that exhausts me beyond belief!

So, yeah, a new word is needed to explain it all without explaining it all! That’s all I have, I’m drained!

P.S. Time spent with cats is never wasted!

Be proud…

I am proud of myself because I’ve survived the days I thought I couldn’t!

If all you did was survive today, be proud, that’s good!

It takes a lot of energy to survive!

It takes a lot of energy to get through a day with a chronic illness!

It takes a lot of energy to fight everyday, just remember that each day you are here, you are winning!

It’s okay to be tired!

It’s okay to be tired of living this life, just don’t give up on yourself M

You are going to make it through this!

STAY ALIVE!

YOU’VE GO THIS!

Be proud of yourself for surviving each day!

Shouldn’t be this way….

Nobody should have to love like this!

Nobody should have to be in so much pain!

Nobody should have to live with this much anxiety!

Nobody should have to live with this much fear!

Nobody should have to live with this much sickness!

Nobody should have to live with this much depression!

Nobody should have to live with mush hate!

Nobody should have to live with this much dizziness!

Nobody and I mean NOBODY should have to love like this!

Where did all of this come from?

Why does breathing have to hurt so much?

Why does it feel like you’ve been hit by a train when waking up?

Why does someone who is able to do anything one day and then the next day a small injury takes it all away?!

Why does this happen?

Why can’t doctors figure out a way to help?

Why can’t people recognize how much you suffer and get some assistance?

Why do some doctors lie in your medical charts just because they don’t understand or believe what is happening to you?

Why do some people who abuse the system get disability, but the ones who desperately need the help and are suffering not get it?

Why do people have to suffer?

Why do people get told that they are too disabled to work, but can’t get disability?

Why does life have to be this way?

Why does the medication that is supposed to help cause bad side effects that prevents you from being able to take it?

What does life have to be so difficult?

Why can’t people be able to be healthy and happy?

Why can medication help some people but not all people?

Why? Why? Why?

Nobody should have to!

What is one thing that all chronic illness sufferers want?  Answers to health issues and understanding!

Stop me if you’ve heard this before! I love stuffed animals!

Mental health….

Talking about mental health is not attention seeking! People die in silence everyday due to this judgment and then people finally say “I wish they would have said something!”

We live in a society that stigmatizes mental health but mourns suicide!

The axe forgets, but the tree remembers!!

If I could show you how awful you made me feel, you would never look me in the eye again!

Mental health relapses happen! It doesn’t mean all your healing is thrown away! Accept what comes and remember allowing yourself to feel, even the uncomfortable things, is part of the process!

You are not required to set yourself on fire to keep other people warm!

The heart gets confused when it’s constantly told “I love you” by the same people who destroy it!

It’s not an apology:

I’m sorry, but….

I love you…..

Just forget about it…..

You’re being too sensitive…

It’s not my fault you feel that way…..

I didn’t mean it that way….

I will apologize if….

I’m sorry that you….

Let’s just move on….

I don’t  know anyone else who would get upset over this…..

I only said that because you….

If you know someone with a mental illness who has stopped showing their struggle, don’t assume it’s because they’ve gotten better!

Sometimes the moment they atop showing it is the moment they’re really getting worse!!

Are you okay??

No, I’m not okay! I am depressed, my life is falling apart, I want to tell someone! I want someone to hug me and tell me honestly that everything is going to be okay! I want to tell someone everything that is hurting and bothering and/or happening to me….

Sure, it’s okay, I’m fine, thanks!

Having anxiety and depression is like being scared and tired at the same time! It’s fear of failing but no desire to be productive! It’s wanting friends but not wanting to go out and socialize!

It’s caring about everything and nothing at the same time! It’s wanting to be alone but not wanting to be lonely!

Don’t be so hard on yourself, you are doing the best that you can!!

Mental illness is not a personal failure!!

Your feelings are valid!!

You deserve to be loved unconditionally!!

You deserve to be happy!!

If all you did was wake up and survive today, you are doing great!

You are enough!!!

What did you do today to make yourself feel good????

Nobody knows…

These four walls closing more everyday and I’m dying inside and nobody knows it but me…

The pain is real even if nobody knows and I’m crying inside and nobody knows it but me…

I’m missing me and nobody knows it but me…

Nobody knows the pain that I feel!

The nights are long and the days are so sad, and nobody knows it but me…

Nobody will ever know the true feelings inside my head. They will never know the pain and torture living in my head. I wish I didn’t know about it either. Living with an invisible chronic illness doesn’t help things at all. It is a very hard life and I don’t wish it on anyone!

You try and get out of your head, but it is just so very very hard to do! Creating and craftiness helps distract me from it all. Listening to books and music is also very helpful, but at some point it all catches up with you and knocks you down.

We shouldn’t be made to feel bad about all of this. I say embrace it, let it out, scream, cry, break things if needed! Visiting these feelings and letting them out can be very good for you. It is okay to not be okay, let yourself deal with it. It is okay to visit and deal with it, just don’t unpack and live there. You need to find a way to deal with it all, find something that helps make you happy.

Never apologize for feeling hurt and sad, it is all part of being human. Never apologize for being you, for being real, it’s like apologizing for being human and that isn’t cool or necessary!

People hate for no reason and it’s becoming too easy and normal to do! I say let’s love for no reason! Less hate & more love!

You are beautiful, worth it, amazing and someone is happy just knowing that you exist! When you’re out doing life things, take the time to smile, wave or even say hi to someone, you never know it could just be the reason that they keep going in this life we live!

Nobody knows the horror that is in our heads, but maybe, just maybe it is time that people learn what is like, then possibly we could all learn to deal with it and help each other out and be a little bit happier!

Can’t be that bad…

One of my  favorite quotes from someone is always “it can’t really be that bad if you are still able to do this or that.”  I told them I didn’t know I had a choice.

Years in pain, tired and the many changes in me for no apparent reason … Hiding everything from everyone, pretending to be doing better than you are, just so I don’t have to hear them complain and put me down because of it all! You just do what you can so you don’t feel worse from the comments and suggestions from others!

Then the moment comes when they tell you what you have … You have mixed feelings: you finally know what you have, but how do you deal with it? The relief in finally having something to call these health challenges, but still not knowing how to help it. Sadly there is no real fix or cure, just goin through life trying numerous things to get a even the smallest amount of relief!

Lack of support and motivation, wanting to lie down, taking medication frequently; having a whole pharmacy on top of the nightstand.

Then, the daily responses, “Why did you get so fat?” “I have this great diet, if you just go out and exercised. If you just keep going and moving, it will be better for you! If you just have a positive mindset it will change everything and you will feel better!

This is all somewhat true in a way, as for some these things do help. Sadly for others no matter how much you try , they don’t help, and that is one the hardest parts of this all!

Silent and invisible diseases do exist …When you have an invisible disease it is difficult to argue from your perspective with ignorant people. They will never understand! Just best to save your energy for getting through the day and trying to find some relief!

Sick of always being told:

❌Did you go to the doctor?

❌ Have you tried this?

❌ Have you tried that?

❌You just need to exercise more!

❌ I don’t know what else we can do for you…

❌ I know someone who has that, and they do this, why can’t you?

Yes! I have and still do try everything !!!

Doctor’s say I just have to learn to deal with and there isn’t anything else they can do! I will never give up and I really want to make others know…

❌ A nap will not make it better! !

❌Exercise will not help me!

❌I am not lazy, this illness drains my energy and I never get good sleep!

❌I am not angry but sometimes it all gets to be too much!

❌I struggle daily with pain, mobility problems, fatigue and cognitive issues!

❌Just because I have the energy in this moment, doesn’t mean that I will always have it! It disappears instantly whenever it wants to!

Most frustratingly, people look at me and say, “It can’t be that bad; you look good “

“You must be better, because you’re smiling!”

Despite the fact that my body is experiencing excruciating pain everywhere, of course I look good, I always try to look good and it is an “invisible” disease. You can’t see it, but I for sure can feel it! You can’t fix it and you probably will never understand, but the truth is, I don’t fully understand it either!

Just have patience with me and all the others that suffer with these health challenges, we are simply doing the best that we can with everything!

I wish feelings were like Alexa

Hey Alexa, stop!

And she stops!

I wish a lot of other things were like Alexa, don’t you?

Hey fear, stop!

Hey crying, stop!

Hey worrying, stop!

Hey bad thoughts, stop!

Hey overthinking, stop!

Hey pain, stop!

Hey migraine, stop!

Hey sickness, stop!

Hey (insert issue here), stop!

Wouldn’t it be amazing if we could say that and have it happen! Life would be so much easier! You could tell just about anything to stop and it would stop!

As good as that all sounds, I guess it would take all the fun & adventure out of our lives! We’d be happy to get rid of the bad stuff, but we would miss so much good tangled up in that bad! Seriously think of what we would miss out on if we could stop all of that! It’s kind of like the fast forward button on videos, tv, movie, ect.. We skip the parts we don’t like, but what if in those parts something amazing was hiding! There is something to learn and gain from every bad situation in our lives! Sometimes we can’t see it until years down the road! Now sadly not every bad part is going to have a good part, but there is a reason for it all even if we may never know that reason!

What would your life really look like if we just stopped everything we didn’t like or didn’t feel we had time for! Would you work, if work is not fun? If not, how would you do the things you love so much? Wow, way too many questions and thoughts in this area of it all!

Life would be a tad boring!

I’m sorry for your pain

My dear friend,

I am so sorry for your pain.

Don’t worry; no one else sees it, I promise. To the rest of the world, you’re fine. But when you’ve been there, you can’t miss it.

I see it in your eyes. That awful, combustible mixture of heart-wrenching pain and abject fear. God, I remember the fear.

I see it in the weight of that invisible cloak that you wear. I remember the coarseness of its fabric on my skin. Like raw wool in the middle of the desert. You see, it was mine for a time.

I never would have wanted to pass it on to you, my love. I remember so well suffocating under the weight of it, struggling for breath, fighting to throw it off while wrapping myself in its awful warmth, clutching its worn edges for dear life.

I know that the fear feels like it’s permanent, fixed. But one day down the line you will wake up and find that you’ve left it next to the bed. Eventually, you’ll hang it in the closet. You’ll visit it now and then. You’ll try it on for size. You’ll run your fingers over the fabric and remember when you lived in it, when it was constant, when you couldn’t take it off and leave it behind. But soon days will go by before you wear it again, then weeks, then months.

I know you are staring down what looks to be an impossibly steep learning curve. I know it looks like an immovable mountain. It is not. I know you don’t believe me, but step by step you will climb until suddenly, without warning, you will look down. You will see how far you’ve come. You’ll breathe. I promise. You might even be able to take in the view.

You will doubt yourself. You won’t trust your instincts right away. You will be afraid that you don’t have the capacity to be what you want to be. Worse, you’ll think  that you don’t even know what you need be. You do. I promise. You will.

That’s how it happens. When you need capacity you find it. Your heart expands. It just does. It’s elastic. I promise.

You are so much stronger than you think you are. Trust me. I know you. Hell, I am you.

You will find people in your life who get it and some that don’t. You’ll find some that want to get it and some that never will. You’ll find a closeness with people you never thought you had anything in common with. You’ll find comfort and relief with friends who speak your new language. You’ll find your village.

You’ll change. One day you’ll notice a shift. You’ll realize that certain words have dropped out of your lexicon. The ones you hadn’t ever thought could be hurtful.  Gimp, lazy, malingerer, stupid.   Never again. You won’t laugh at vulnerability. You’ll see the world through a lens of sensitivity. The people around you will notice. You’ll change them too.

You will learn to ask for help. You’ll have to. It won’t be easy. You’ll forget sometimes. Life will remind you.

You will read more than you can process. You’ll buy books that you can’t handle reading. You’ll feel guilty that they’re sitting by the side of the bed unopened. Take small bites. The information isn’t going anywhere. Let your heart heal. It will. Breathe. You can.

You will blame yourself. You’ll think you missed signs you should have seen. You’ll be convinced that you should have known. That you should have somehow gotten help earlier. You couldn’t have known. Don’t let yourself live there for long.

You will dig deep and find reserves of energy you never would have believed you had. You will run on adrenaline and crash into dreamless sleep. But you will come through it. I swear, you will. You will find a rhythm.

You will neglect yourself. You will suddenly realize that you haven’t stopped moving. You’ve taken care of everyone but you. You will forget how important it is to take care of yourself. Listen to me. If you hear nothing else, hear this. You MUST take care of yourself. You are no use to anyone unless you take care of yourself first. I mean that holistically, my friend. Nourished, rested, soul-fed. Your children and others deserve that example.

A friend will force you outside. You will look at the sky. Follow the clouds upward. Try to find where they end. You’ll need that. You’ll need the air. You’ll need to remember how small we all really are.

You will question your faith. Or find it. Maybe both.

You will never, ever take progress for granted. Every milestone met, no matter what the timing, will be cause for celebration. Every baby step will be a quantum leap. You will find the people who understand that. You will revel in their support and love and shared excitement.

You will encounter people who care for you in ways that restore your faith in humanity. You will cherish the friends and people and doctors who see past your challenges and who truly understand your strengths. They will feel like family.

You will examine and re-examine every one of your own insecurities. You will recognize some of other’s challenges as your own. You will get to know yourself. You will look to the tools you have used to mitigate your own challenges. You will share them. You will be better for it.

You will come to understand that there are gifts in all of this. Tolerance, compassion, understanding. Precious, life altering gifts.

If you are a parent, you will worry about your children. You will feel like you’re not giving them enough time. You will find the time. Yes, you will. No, really. You will. You will discover that the time that means something to them is not big. It’s not a trip to the circus. It doesn’t involve planning. It’s free. You will forget the dog and pony shows. Instead, you will find fifteen minutes before bed. You will close the door. You will sit on the floor. You’ll play Barbies with your daughter or Legos with your son. You’ll talk. You’ll listen. You’ll listen some more. You’ll start to believe they’ll be OK. And they will. You will be a better parent for all of it.

You will find the tools that you need. You will take bits and pieces of different theories and practices. You’ll talk to peers and doctors and therapists. You’ll take something from each of them. You’ll even find value in those you don’t agree with at all. Sometimes the most. From the scraps that you gather, you will start to build your quilt. A little of this, a little of that, a lot of love.

You will speak hesitantly at first, but you’ll find your voice. You will come to see that no one knows you better than you do. You will respectfully listen to the experts in each field. You will value their experience and their knowledge. But you will ultimately remember that while they are the experts in science, you are the expert in you.

You will think you can’t handle it. You will be wrong.

This is not an easy road, but its “rewards” at times are tremendous. The remissions, however small, are the very sweetest of life’s nectar. You will drink them in and taste and smell and feel every last drop of them.

You will be OK.

And I will be here for you. Every step of the way.